On Sunday morning, we went on a Dolphin Cruise. It left from Portofina resort and made a circle through the bay, under the bridge, by the lighthouse, and by Fort Pickens. We didn't see that many dolphins but the ride was beautiful. It was fascinating to see the sights from the water.
We almost didn't make it to the cruise. Snugglebug decided to go on a sleep strike. By the time Sunday morning rolled around, we had had 3 nights of very little sleep. We were extremely exhausted but we propelled ourselves out of bed and on our way. In the end, it was all worth it, and I was so glad we went despite our sleepy eyes!
One note: The picture with the para sailor is hard to see, but the parachute is a yellow smiley face.
Wednesday, July 15, 2009
Friday, July 10, 2009
Monday, July 6, 2009
Fireworks
For those of you who love fireworks and have 1 minute 40 seconds to spare....
You might notice a blimp in some of the photos. He was flying right through the fireworks display. That advertiser got his moneys worth. Also the smaller fireworks in some of the photos are distant displays put on by other cities. Made for a very thrilling night!
You might notice a blimp in some of the photos. He was flying right through the fireworks display. That advertiser got his moneys worth. Also the smaller fireworks in some of the photos are distant displays put on by other cities. Made for a very thrilling night!
Vacation!!!
So we have had a countdown running for weeks leading up to my husband's vacation! And now we are finally here! We are in Pensacola Beach, Florida!! And loving every minute of it.
Snugglebug met the beach for the first time and as long as he was in his daddy's strong arms he was ok. But the minute his feet touched the water, it was all over, and he was ready to go home. The sand was ok, but not of great interest. The next morning I took him out alone while his Daddy slept and Snugglebug was having nothing of the water. So, we sat and played in the sand till naptime approached. He started rubbing his sand-laden hands against his tired eyes, and I quickly realized it was time to go.
The pool on the other hand is quite a thrill for Snugglebug. He can't get enough of the pool. The water is calm and warm as compared to the ocean that is rough and cold.
We have had a lot of family time which Snugglebug is enjoying immensely. He gets upset if one of us leaves the room or sleeps in. He wants us all together all the time!
We also ventured out to the boardwalk over the weekend. It wasn't too crowded and it was great to see it alive once again. We were here last shortly after the hurricane and it was quiet, and the shops were desolate. We had some lunch in one of the shops. I had a salad while my husband had a burger and Snugglebug at his favorite, grilled cheese. The waiter/owner was Greek with a heavy accent. I asked the man to leave the croutons off my salad.
"Okay," he said, "no cheese," he repeated as he wrote.
"No, I don't want croutons. The cheese is fine," I corrected.
"No cheese," he repeated and showed me his pad so I knew he had written it down.
My husband chimed in at this point and said, "No bread for her salad."
"Okay, no croutons," he wrote as he spoke.
So I ate a salad with no cheese and no croutons.
We followed up lunch with ice cream, and Snugglebug tasted chocolate ice cream for the first time. He has had vanilla but never chocolate. He liked the ice cream just fine but found it hard to focus on eating when there were so many interesting people to watch.
On the 4th, we watched fireworks from outside our condo. From the 8th floor, we had a glorious view, and I was able to put my new photography hobby into practice. I took over a hundred and fifty photos of the fireworks. I had so much fun! I'll post a few of them in a separate post.
Snugglebug met the beach for the first time and as long as he was in his daddy's strong arms he was ok. But the minute his feet touched the water, it was all over, and he was ready to go home. The sand was ok, but not of great interest. The next morning I took him out alone while his Daddy slept and Snugglebug was having nothing of the water. So, we sat and played in the sand till naptime approached. He started rubbing his sand-laden hands against his tired eyes, and I quickly realized it was time to go.
The pool on the other hand is quite a thrill for Snugglebug. He can't get enough of the pool. The water is calm and warm as compared to the ocean that is rough and cold.
We have had a lot of family time which Snugglebug is enjoying immensely. He gets upset if one of us leaves the room or sleeps in. He wants us all together all the time!
We also ventured out to the boardwalk over the weekend. It wasn't too crowded and it was great to see it alive once again. We were here last shortly after the hurricane and it was quiet, and the shops were desolate. We had some lunch in one of the shops. I had a salad while my husband had a burger and Snugglebug at his favorite, grilled cheese. The waiter/owner was Greek with a heavy accent. I asked the man to leave the croutons off my salad.
"Okay," he said, "no cheese," he repeated as he wrote.
"No, I don't want croutons. The cheese is fine," I corrected.
"No cheese," he repeated and showed me his pad so I knew he had written it down.
My husband chimed in at this point and said, "No bread for her salad."
"Okay, no croutons," he wrote as he spoke.
So I ate a salad with no cheese and no croutons.
We followed up lunch with ice cream, and Snugglebug tasted chocolate ice cream for the first time. He has had vanilla but never chocolate. He liked the ice cream just fine but found it hard to focus on eating when there were so many interesting people to watch.
On the 4th, we watched fireworks from outside our condo. From the 8th floor, we had a glorious view, and I was able to put my new photography hobby into practice. I took over a hundred and fifty photos of the fireworks. I had so much fun! I'll post a few of them in a separate post.
Busy Month
I just realized it has been almost an entire month since my last posting but what a busy month it has been. We have had 4 doctor's appointments, 2 therapy appointments, 1 birthday party, 1 family reunion/camping trip, 1 baby shower, and now we are on vacation.
July will be just as busy as June. It never really seems to slow down. I always think that once summer gets here things will slow down but they never do. This summer is even busier than the ones before since we have added so many doctors appointments and now physical therapy. I have decided that one child with special needs is the equivalent to four or five healthy ones. While healthy children go to the doctor with an ear ache or the flu, we go for hearing issues, growth issues, and digestive issues. I am incredibly thankful that Snugglebug has been healthy in all other ways. To add the flu or chronic ear infections to the already extensive list would be too much to handle.
I am learning more and more about 7q11.23 duplication syndrome. I am learning that most of Snugglebug's health issues are related to that duplicated gene. I also am finding myself amazed at the intricacies of genetics...that just one duplicated gene can wreak havoc on the system in so many ways is amazing. Granted, Snugglebug has more than one gene duplicated in that region but it all ties in together. Makes a person wonder how anyone could ever believe in evolution.
So much more research needs to be done on 7q11.23 duplication so that parents like me can have a better understanding of what life will entail. I pray for those scientists everyday that they will have a growing passion to seek out answers for the rest of us.
July will be just as busy as June. It never really seems to slow down. I always think that once summer gets here things will slow down but they never do. This summer is even busier than the ones before since we have added so many doctors appointments and now physical therapy. I have decided that one child with special needs is the equivalent to four or five healthy ones. While healthy children go to the doctor with an ear ache or the flu, we go for hearing issues, growth issues, and digestive issues. I am incredibly thankful that Snugglebug has been healthy in all other ways. To add the flu or chronic ear infections to the already extensive list would be too much to handle.
I am learning more and more about 7q11.23 duplication syndrome. I am learning that most of Snugglebug's health issues are related to that duplicated gene. I also am finding myself amazed at the intricacies of genetics...that just one duplicated gene can wreak havoc on the system in so many ways is amazing. Granted, Snugglebug has more than one gene duplicated in that region but it all ties in together. Makes a person wonder how anyone could ever believe in evolution.
So much more research needs to be done on 7q11.23 duplication so that parents like me can have a better understanding of what life will entail. I pray for those scientists everyday that they will have a growing passion to seek out answers for the rest of us.
Saturday, June 6, 2009
Sorting, Sorting, Sorting
This week I have finally sorted the hand-me-down clothes from my sister and one of my friends. I spent three days sorting through bags of clothing and trying to determine what size Snugglebug should wear. He is not an easy one to fit. I determined that shorts and pants are one size and shirts and onesies are another size.
After determining what size he needed, I then sorted out the clothes that were too small for him from his dresser. This may seem like a small thing and not worth mentioning, but I haven't had to sort his clothes since October of last year. So this growth spurt is monumental!
Once finished with the sort, I was able to determine that I had way more clothes than Snugglebug could possibly wear. So, I was able to share my good fortune with someone else. While I put away, three boxes of clothes, and filled Snugglebug's dresser, I also filled three boxes of clothes to give away to someone else. Now, there's blessings for you!
After determining what size he needed, I then sorted out the clothes that were too small for him from his dresser. This may seem like a small thing and not worth mentioning, but I haven't had to sort his clothes since October of last year. So this growth spurt is monumental!
Once finished with the sort, I was able to determine that I had way more clothes than Snugglebug could possibly wear. So, I was able to share my good fortune with someone else. While I put away, three boxes of clothes, and filled Snugglebug's dresser, I also filled three boxes of clothes to give away to someone else. Now, there's blessings for you!
Snugglebug Feeds Himself for the Very First Time
This video is actually from last Tuesday, but I am just now finding the time to upload it. We have been working on spoon-feeding for some time now, and he just hasn't grasped the concept. Most of the time the oatmeal ends up flung all over the floor, walls, and nearby chairs. But today, it clicked for him, and he was eating as fast as I could load the spoon.
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